question:data-sharing
question:data-sharing


Author Comment Last activity Moderation
jjcreedon "Thanks Nick. I'll have to think about that avenue. You are correct, there's so much more I can do here, but I could also alienate them (UB was dire..." | Read more » over 4 years ago
nshapiro "Well done, Jackie! It sounds like things are headed towards a just resolution, no? That's what I gather from "that UB would have to find away aroun..." | Read more » over 4 years ago
nshapiro "Thanks you @hagitkeysar this is so very helpful! " | Read more » over 4 years ago
jjcreedon "We had our meeting yesterday. It appears that UB management was trying to claim that their policy's (in this case conflict of interest with me bein..." | Read more » over 4 years ago
warren "Wow, that's incredible. Hope the DOJ meeting goes well today! " | Read more » over 4 years ago
jjcreedon "Hi everyone, just to provide an update. First, thanks for all your help. I sent a letter to the DOJ probation officer after I attempted to collabor..." | Read more » over 4 years ago
warren "It's ironic that IRB processes, which come directly out of the informed consent clause of the Nuremberg Code, could be used to actually withold inf..." | Read more » over 4 years ago
liz "Would anyone be interested in facilitating a session on this at the Barnraising? @jjcreedon @nshapiro @gretchengehrke etc? " | Read more » over 4 years ago
liz "Hi @jjcreedon , how are things going now? " | Read more » over 4 years ago
hagitkeysar "Some more examples on initiatives can be found here: https://responsibledata.io/indigenous-peoples-responsible-data-readings/ " | Read more » over 4 years ago
hagitkeysar "Hi Nick I just came across this great network and resource, maybe you already know of it? They created a model which they term as "Community Resear..." | Read more » over 4 years ago
jjcreedon "I would like to ask for co ownership, id that too much of an ask, do you think? considering we are well into the project aloo- we not only want acc..." | Read more » almost 5 years ago
jjcreedon "okay, really good info. Ill find out today (meeting at 3pm) " | Read more » almost 5 years ago
gretchengehrke "Hi Nick, I can put you in touch with folks Lisa Rasmussen who put together a Citizen Science Ethics conference where co-ownership and equitable par..." | Read more » almost 5 years ago
gretchengehrke "Hi Jackie, you should be able to have the IRB amended. Are the researchers willing to file an amendment with their IRB? " | Read more » almost 5 years ago
jjcreedon "I'm in a situation where the university wont share data with our community group because we are not covered by the University's IRB policy. We want..." | Read more » almost 5 years ago
nshapiro "Thank you, super helpful! do you have any examples of what that co-ownership language might look like? " | Read more » almost 5 years ago
kanarinka "A good model that I just heard about is to build this language of co-ownership into your IRB. This then functions as a document that you can refer ..." | Read more » almost 5 years ago